Clarifer captures what happens between hospital visits. Longitudinal, caregiver-reported, consented.
70% of adverse events happen at home, after discharge. EHR systems go dark the moment the patient leaves.
Caregivers observe daily: medication adherence, symptom patterns, functional decline. None of it enters the medical record.
No longitudinal, consented, caregiver-reported dataset exists at scale. Clarifer is building it.
Severity, frequency, and functional impact
Taken, missed, and timing
Lab reports, imaging, and clinical notes
Questions asked and information gaps
Which trials, which barriers
Time, stress, and coordination load
Caregivers opt in to anonymized data sharing. They see exactly what is shared. They can withdraw anytime.
All identifiers removed. Data structured for research use. IRB-compatible data sharing agreements.
Minimum 5% of research licensing revenue flows directly to the Caregiver Support Fund.
Clarifer's founding use case is cholangiocarcinoma caregivers. The platform was built by a founder who was a CCA caregiver. The CCF community is not a pilot. It is the foundation.
The CCF partnership gives Clarifer access to one of the most engaged, medically sophisticated caregiver communities in rare cancer.
We are seeking academic medical center and foundation research partners. First research licensing deals are priced to establish the model, not to maximize revenue.